Tales from my eventful and ongoing journey as a Generation X caregiver for my father and as an advocate for Lewy Body Dementia caregivers.
LBD Caregiver Link
Toll-free LBD Caregiver Link – 800.539.9767
LBD families and caregivers can connect directly on a regional basis, through the LBD Caregiver Link, featuring “Lewy Buddies.” “Lewy Buddies" are experienced LBD caregivers who share their time and experience with LBD families by:
v Listening compassionately and confidentially to the challenges of LBD families and sharing their own personal experience with LBD
v Offering emotional support
v Referring families to additional LBDA programs and services as appropriate for their needs.
While Lewy Buddies are not able to provide medical advice and are not medical professionals, they are typically well informed about LBD through their personal experiences and volunteer training with LBDA. They may also be able to help identify information and community resources concerning the diagnosis and care of a person with Lewy body Dementia.
When calling or emailing the LBD Caregiver Link, you will speak with an experienced caregiver who can provide information on LBD and who can also share their personal experience and compassion. Please leave a message and an LBDA volunteer will return your call within 24-48 hours.
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1-866-232-8484
Compassion. Knowledge. Care.
That's what AFA's toll-free hot line delivers. When you reach out to us, licensed social workers and other professionals knowledgeable about Alzheimer's disease and related illnesses will answer your call. They will respond to your questions and direct you to appropriate local resources to meet your needs. No question is too small; no concern is too insignificant.
AFA's toll-free hot line provides information, counseling by licensed social workers and referrals to community resources across the nation.
The hot line operates during regular business hours—Monday through Friday, 9 am to 5 pm (ET). During these hours, social workers are available by phone, as well as via Skype and live chat; to connect via Skype and live chat, click here. At all other times, please leave a message and we will return your call. To ask a question via e-mail, click here. If your situation is an emergency, please dial 911 when appropriate.
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http://www.fulllifecare.org/
Welcome to Full Life Care – formerly ElderHealth Northwest. Full Life helps adults of all ages with chronic illnesses, physical or developmental disabilities. We are a not-for-profit organization dedicated to improving people’s lives and supporting caregivers. Since the 1970s, we have helped thousands of individuals preserve their dignity and avoid living in a nursing home or in isolation.
This is a great organization. My Dad visited them for years and got a lot of support through their Men's Support Group. I highly recommend them for help and support of your loved one.
The Alzheimer's Association's Helpline is a toll-free number that you can call 24-hours a day, 7 days a week to get information about Alzheimer's disease. Through our National office, we have the ability to serve individuals in 140 different languages by accessing translation services.
Call 800.272.3900 to speak with a trained Helpline specialist who will provide emotional support and appropriate referrals to local resources in the 23 counties served by the Association. All calls are confidential.
Why not self-publish your book?
ReplyDeleteI'm definitely leaning that way and will probably start investigating how to do that! How are you doing?
ReplyDeleteHello Joy,
ReplyDeleteThanks for the resources on your blog, I am going to check out a few of the ALZ sites you hve listed. I found you and others through "had a dad alzheimers" blog...Gevera has been a great resource also. We (my hubby and I and our 5 children) live in WA also and care for my grandparents in our home. My grandmother (Gigi) suffers from late stage ALZ and my grandfather (Papa) is wheelchair bound. We are thankful for any and all information/training we can find! Blessings to you as you care for your Dad.
Chessa
Thank you so much for your lovely comments, I'm glad I can be of some help. If there's anything else I can do or questions I can answer, I'm always available! So sorry to hear about your parents, be strong!
ReplyDelete