Check out the new "Lewy Who?" campaign at the Lewy Body Dementia Association.
A personal, moving, yet often funny exploration of the impact of Lewy-Body dementia from the perspective of a Generation X caregiver; from denial to diagnosis, from care-giving to cleaning out the house
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“NAMENDA XR offers important benefits, including convenient, once-daily dosing, which is particularly meaningful for this patient population and their caregivers. Our decision to focus on NAMENDA XR is supported by these benefits as well as the positive feedback we’ve received from physicians and caregivers since the launch of NAMENDA XR,” said Marco Taglietti, MD, Chief Medical officer and EVP, Drug Development and Research of Forest. “The conversion also allows us to streamline our resources and explore innovative new compounds that may be effective for the treatment of Alzheimer’s disease, including the fixed-dose combination of NAMENDA XR and donepezil, which is under development.”Importantly, physicians can switch patients from NAMENDA to NAMENDA XR the very next day without titration, as outlined in the FDA-approved package insert. In addition to its convenient dosing, NAMENDA XR capsules can be opened and the contents sprinkled on applesauce for patients who have difficulty swallowing pills.
“Given the day-to-day challenges of caring for someone with Alzheimer’s disease, there is a need for treatments that simplify a patient’s daily regimen and may help caregivers manage their loved ones’ needs,” said Gustavo Alva, MD, Neuropsychiatrist and Medical Director at ATP Clinical Research in Costa Mesa, CA. “For many families, NAMENDA XR is already fulfilling this need as a once-a-day treatment alternative.”Forest sponsored a third-party survey that included 250 physicians treating Alzheimer’s patients and 250 caregivers of Alzheimer’s patients.
Links to my articles on Practical Alzheimer's.
My Blog featured on Caring.com!
Winner of Healthline.com's 25 Best Dementia Blogs of 2012 and 2013!
LBD Caregiver Link
Toll-free LBD Caregiver Link – 800.539.9767
LBD families and caregivers can connect directly on a regional basis, through the LBD Caregiver Link, featuring “Lewy Buddies.” “Lewy Buddies" are experienced LBD caregivers who share their time and experience with LBD families by:
v Listening compassionately and confidentially to the challenges of LBD families and sharing their own personal experience with LBD
v Offering emotional support
v Referring families to additional LBDA programs and services as appropriate for their needs.
While Lewy Buddies are not able to provide medical advice and are not medical professionals, they are typically well informed about LBD through their personal experiences and volunteer training with LBDA. They may also be able to help identify information and community resources concerning the diagnosis and care of a person with Lewy body Dementia.
When calling or emailing the LBD Caregiver Link, you will speak with an experienced caregiver who can provide information on LBD and who can also share their personal experience and compassion. Please leave a message and an LBDA volunteer will return your call within 24-48 hours.
Compassion. Knowledge. Care.
That's what AFA's toll-free hot line delivers. When you reach out to us, licensed social workers and other professionals knowledgeable about Alzheimer's disease and related illnesses will answer your call. They will respond to your questions and direct you to appropriate local resources to meet your needs. No question is too small; no concern is too insignificant.
AFA's toll-free hot line provides information, counseling by licensed social workers and referrals to community resources across the nation.
The hot line operates during regular business hours—Monday through Friday, 9 am to 5 pm (ET). During these hours, social workers are available by phone, as well as via Skype and live chat; to connect via Skype and live chat, click here. At all other times, please leave a message and we will return your call. To ask a question via e-mail, click here. If your situation is an emergency, please dial 911 when appropriate.***************************
Welcome to Full Life Care – formerly ElderHealth Northwest. Full Life helps adults of all ages with chronic illnesses, physical or developmental disabilities. We are a not-for-profit organization dedicated to improving people’s lives and supporting caregivers. Since the 1970s, we have helped thousands of individuals preserve their dignity and avoid living in a nursing home or in isolation.
This is a great organization. My Dad visited them for years and got a lot of support through their Men's Support Group. I highly recommend them for help and support of your loved one.
The Alzheimer's Association's Helpline is a toll-free number that you can call 24-hours a day, 7 days a week to get information about Alzheimer's disease. Through our National office, we have the ability to serve individuals in 140 different languages by accessing translation services.
Call 800.272.3900 to speak with a trained Helpline specialist who will provide emotional support and appropriate referrals to local resources in the 23 counties served by the Association. All calls are confidential.
Tired of hearing that your community doesn’t have a support group for family caregivers? Or a support group that meets your needs? Why not start your own? Bette, who blogs on Caregiving.com and started a support in August 2011, and Denise will share tips and suggestions on how to start a group. They’ll also tell you about the resources available on Caregiving.com that will help make your group a success.Can’t attend the live webinar? Still register; we’ll send you a link to the archive. Register at Caregiving.com.
Memory Care & Wellness Services is a specialized, dementia day service program. It offers a blend of health, social and family caregiver supports – including a structured exercise program for the person with dementia. It is offered as a supportive service through the Family Caregiver Support Programs in Whatcom (St. Joseph Medical Center), Skagit (Skagit Adult Day Care) and King Counties (Full Life Care) - for families living with dementia. Certain eligibility criteria apply; and, a sliding fee based on income of the participant may be required
For more information in these areas, call your local Family Caregiver Support Program:
King County: (206) 206-448-3110 or 1-888-435-3377
Skagit County: (360) 428-1301
Whatcom County: (360) 676-6749
A federal grant is now offering the Memory Care & Wellness Study in Pierce County at two sites - Cascade Park Active Day and MultiCare Adult Day Health. In Pierce County, this grant is a research project to see if the service makes a difference for local participants.
For more information about the Memory Care & Wellness Service study in Pierce County, call:
Pierce County Aging and Disability Resource Center: (253) 798-4600 or (800) 562-0332.
Join us for the Frye Art Museum’s program for individuals with dementia and their care partners. here:now provides gallery discussion tours and art-making opportunities for those living with dementia to enjoy a creative and relaxing afternoon together.
Each month specially trained museum educators and gallery guides lead a discussion-based tour highlighting works of art from the Frye’s exhibitions. Conversation creates an exchange of ideas without relying on short-term memory or recall of art historical information. Tours also include in–gallery hands-on activities.
Gallery Tour and Art-making Class
This six-session class offers conversation-based gallery tours and studio art-making experiences for individuals with dementia and their care partners. Art-making in the Frye Studio encourages experimentation with various media including watercolor paint, clay and collage. A short social time concludes each class.
Preregistration is required for the tours and the six-session class
(206)432-8211 or firstname.lastname@example.org