Saturday, May 24, 2014
Quiet Dangers.
A few years ago, my father had emergency surgery for an
infected boil. I happened to be out of town at the time, but the surgery went
well and he was out of the hospital in a few days. When I went to see him the
morning he got back home, he looked just awful. Gray, a little clammy, stiff,
and obviously still in a great deal of pain in his nether region. He looked
like he’d been through the ringer. A few hours later, I got a call from his
caregiver that he was concerned about Dad, who wasn’t eating, was sweating
profusely, couldn’t go to the bathroom, and just seemed ill. I told Greg to
take him to the ER and I took off.
Here is a link to a great article recently on another
possible effect of UTIs.
When they came into the lobby, poor Dad looked like a
spooked horse. Eyes rolling, showing the whites, stumbling, and obviously in
distress. We got him into a wheelchair and the nurse took him back. As I waited
next to him, I felt so helpless. After hours and tests, it was determined that
the problem was excessive pain: Greg hadn’t given him enough pain meds because
he hates to drug up his residents. Once the doctor-administered pain med
started to work, Dad was a lot better. I made sure that Dad got all the pain
meds he needed after that.
What too many people don’t know, caregivers and
non-caregivers alike, are the life-threatening effects that things like pain,
discomfort, infections, and surgeries can have on those with dementia. An
infection can cause unexpected of behavior issues, acting out, total withdrawal,
catatonia, and, of course, death from the dangers of the infection. The effects of anesthesia can include permanent muscles stiffness,
Parkinson’s symptoms, and cognitive breakdown. Pain can cause some of the same
things, as well as making the individual unable to do things like eat, go to
the bathroom and sleep.
For us, these are relatively simple things, (usually) easily
fixed. But for a person with dementia, it becomes a whole other, serious,
issue. Because, the problem is, they can’t tell us what is going on! We have to
guess and make mistakes and cause even greater discomfort before we figure it
out. They, and we, have to rely on their bodies to help us understand. I felt
so bad for Dad, having to suffer for so long, not knowing why, and not able to
tell anyone about it, bewildered and in pain. I know what it’s like to be in
pain, and it’s something you want to go away ASAP.
This is why the more articles, and blog posts, and forum
topics, and Facebook posts I see warning people of the dangers and effects of
pain, infections, and surgeries, the better. We need to keep getting the word
out, not only to family caregivers, but to professional facilities so they know
exactly what they are looking at when they are looking at it, and can act as
soon as possible. Nobody deserves to be in pain or discomfort, and everyone
deserves to be heard and cared for – we need to listen to what they may be
trying to tell us.
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Exactly! it is a daily excersize for me to go over my mother. ears, nails, teeth, listening at bathroom door, looking at underwear. If she goes 'ouch' walking a long she will deny it, so i have to observe all the time. She will also deny being tired!
ReplyDeleteUgh... reminds me of the time MIL had an ulcer and didn't tell us of any pain or any symptoms until it burst. And then her house flooded while she was in hospital. Nightmare six months would NEVER want to repeat, but wrote about it here... :)
ReplyDeletehttp://dementiapoetry.com/2014/05/10/the-great-flood/
DG x