Well, I guess we'll see if this actually helps... personally I'm not sure if the government is capable of doing anything useful to help with this terrible epidemic.
National Plan to Fight Dementia Released
Yesterday Health and Human Services Secretary Kathleen Sebelius released an ambitious national plan to fight Alzheimer's disease. The plan was called for in the National Alzheimer's Project Act (NAPA), which President Obama signed into law in January 2011. NAPA sets forth five goals, including the development of effective prevention and treatment approaches for Alzheimer's disease and related dementias by 2025.
The National Plan to Address Alzheimer's Disease also includes related dementias like Lewy body dementia, frontotemporal degeneration, vascular dementia and mixed dementias. While the media may only mention Alzheimer's, the law and the National Plan is clearly inclusive of these related disorders, and the impact of this new national plan will ultimately benefit all families dealing with dementia through greater public awareness, increased education of healthcare professionals and increased research funding.
Read the National Plan to Address Alzheimer's Disease. http://aspe.hhs.gov/daltcp/napa/NatlPlan.pdf
For more information on the national plan to address Alzheimer's disease, please visit: www.alzheimers.gov.
Sincerely,
The LBDA Team
Lewy Body Dementia Association
www.lbda.org
Tales from my eventful and ongoing journey as a Generation X caregiver for my father and as an advocate for Lewy Body Dementia caregivers.
Please visit my new blog! You may also visit my website for further resources and to contact me.
Click Here to Buy the Book!
30% Goes to the LBDA.
Teepa Snow
Teepa is the reigning queen of how to interact with those who have dementia and make your life as a caregiver easier and smoother. More importantly, she teaches us how to give our care receiver the best, most comfortable, life possible.
http://www.bing.com/videos/search?q=teepa+snow&qpvt=teepa+snow&FORM=VDRE
http://www.bing.com/videos/search?q=teepa+snow&qpvt=teepa+snow&FORM=VDRE
LBD Support Group
Lewy Body Support Group for Caregivers and Family Members.
Everett at the Carl Gipson Senior Center.
Every second Friday morning of the month, 11-12:30.
Every second Friday morning of the month, 11-12:30.
These Are My Go-To Links for Lewy-Body Dementia and Caregiving.
LBD Caregiver Link
LBD Caregiver Link
Toll-free LBD Caregiver Link – 800.539.9767
LBD families and caregivers can connect directly on a regional basis, through the LBD Caregiver Link, featuring “Lewy Buddies.” “Lewy Buddies" are experienced LBD caregivers who share their time and experience with LBD families by:
v Listening compassionately and confidentially to the challenges of LBD families and sharing their own personal experience with LBD
v Offering emotional support
v Referring families to additional LBDA programs and services as appropriate for their needs.
While Lewy Buddies are not able to provide medical advice and are not medical professionals, they are typically well informed about LBD through their personal experiences and volunteer training with LBDA. They may also be able to help identify information and community resources concerning the diagnosis and care of a person with Lewy body Dementia.
When calling or emailing the LBD Caregiver Link, you will speak with an experienced caregiver who can provide information on LBD and who can also share their personal experience and compassion. Please leave a message and an LBDA volunteer will return your call within 24-48 hours.
Featured Information.
- https://www.senioradvisor.com/
- http://www.alzheimers.net/
- http://alzjourney.com/
- http://www.carepond.com/?state=qna
- http://www.homecareassistanceseattle.com/index.html
- http://therespite.org/
- http://www.caring.com
- http://www.caregivingnw.blogspot.com/
- http://www.seniorcareopt.com/
- http://www.assisted-living-directory.com/
- http://www.nfcacares.org
Media and Awards.
Winner of Healthline.com's 25 Best Dementia Blogs of 2012, 2013, 2014, and 2015!
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Tell Your Stories: A List of Great Blogs About Life, Caregiving and Dementia!
- http://lifetimesthreelivingwithlbd.blogspot.com
- http://dementiapoetry.com/
- http://theimperfectcaregiver.wordpress.com/
- http://alzheimermonologue.wordpress.com/
- http://mydementedmom.com/
- Living in the Shadow of Alzheimer's
- http://wewerefive.blogspot.com/
- http://www.earlyonset.blogspot.com/
- http://momsbrain.wordpress.com/
- http://www.robertssister.com
- http://alzheimersdad.blogspot.com
- http://www.thieflewybodydementia.com
- http://gettingclosertomyself.blogspot.com/
- http://margaretmassey.wordpress.com/
- http://twosocksonefoot.wordpress.com/
- http://www.emuf.blogspot.com
- http://alzheimersspeaks.wordpress.com
- http://www.backdoorlogic.blogspot.com
- http://upsidetodementia.blogspot.com
- http://www.iamnotajedi.com
- www.aforgottendaughter.blogspot.com
- http://goinggentleintothatgoodnight.com/
Sites to be Seen
- http://blog.elderdepot.com/2010/07/great-big-list-of-caregiver-blogs/
- http://www.caregivingcafe.com/
- http://www.aacy.org/
- http://www.houseoflightblog.com
- http://www.caregiver.com/
- http://www.caregiver.org/caregiver/jsp/home.jsp
- http://theconversationproject.org/
- http://www.caregiving.com
- http://www.elderdepot.com
- http://www.fulllifecare.org
- http://www.alzheimers.gov/
- http://www.asbestos.com/
- http://www.caring.com/rheumatoid-arthritis
- http://www.hospicefoundation.org
- http://www.hospicenet.org
- http://bupa.co.uk/download-guide
- http://www.personworks.com
- http://caremanager.org
- http://alzinfo.org
- http://www.lewybodydementia.org
- http://www.arthritis.org
- http://www.alzfdn.org
- http://www.caregiving.com
- http://www.alz.org
"Our deepest calling is to grow into our own authentic self-hood, whether or not it conforms to some image of who we ought to be. As we do so, we will not only find the joy that every human being seeks -- we will also find our path of authentic service in the world." Parker J. Palmer
FEATURING:
Toll-Free Hot Line at the AFA (Alzheimer's Foundation of America)
1-866-232-8484
Compassion. Knowledge. Care.
That's what AFA's toll-free hot line delivers. When you reach out to us, licensed social workers and other professionals knowledgeable about Alzheimer's disease and related illnesses will answer your call. They will respond to your questions and direct you to appropriate local resources to meet your needs. No question is too small; no concern is too insignificant.
AFA's toll-free hot line provides information, counseling by licensed social workers and referrals to community resources across the nation.
The hot line operates during regular business hours—Monday through Friday, 9 am to 5 pm (ET). During these hours, social workers are available by phone, as well as via Skype and live chat; to connect via Skype and live chat, click here. At all other times, please leave a message and we will return your call. To ask a question via e-mail, click here. If your situation is an emergency, please dial 911 when appropriate.
***************************Care Connection Teleconferences with the Alzheimer's Foundation of America.
Care Connection Teleconference
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http://www.fulllifecare.org/
Welcome to Full Life Care – formerly ElderHealth Northwest. Full Life helps adults of all ages with chronic illnesses, physical or developmental disabilities. We are a not-for-profit organization dedicated to improving people’s lives and supporting caregivers. Since the 1970s, we have helped thousands of individuals preserve their dignity and avoid living in a nursing home or in isolation.
This is a great organization. My Dad visited them for years and got a lot of support through their Men's Support Group. I highly recommend them for help and support of your loved one.
Check out Seattle's Grief center if you or someone you know needs a little extra support during a tough time.
http://www.healingcenterseattle.com/
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What is the Helpline?
The Alzheimer's Association's Helpline is a toll-free number that you can call 24-hours a day, 7 days a week to get information about Alzheimer's disease. Through our National office, we have the ability to serve individuals in 140 different languages by accessing translation services.
Call 800.272.3900 to speak with a trained Helpline specialist who will provide emotional support and appropriate referrals to local resources in the 23 counties served by the Association. All calls are confidential.
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• Dementia Partnerships ProjectCarlos Pulido, Aging and Disability Services
(206) 615-0802
About Me
- Joy Walker
- Seattle, WA
- I'm a writer, caregiver advocate, hospice/bereavement counselor and care manager for my father, who suffers from Lewy Body Dementia. I think it's important to talk about caregiving from my point of view as a member of Generation X. I also think it's important to spread the word on what Lewy Body dementia is, and how to deal with it effectively. Some names, dates, details have been altered due to memory discrepancies, to maintain privacy, and to ensure narrative flow.
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