It Took 3 Years and 13 Dumpsters to Clean Up After Lewy Body Dementia.: This is an amazing article I was able to embed-please read!

FEATURING:

LBD Caregiver Link

LBD families and caregivers can connect directly on a regional basis, through the LBD Caregiver Link, featuring “Lewy Buddies.” “Lewy Buddies" are experienced LBD caregivers who share their time and experience with LBD families by:

Listening compassionately and confidentially to the challenges of LBD families and sharing their own personal experience with LBD

Offering emotional support

Referring families to additional LBDA programs and services as appropriate for their needs.

While Lewy Buddies are not able to provide medical advice and are not medical professionals, they are typically well informed about LBD through their personal experiences and volunteer training with LBDA. They may also be able to help identify information and community resources concerning the diagnosis and care of a person with Lewy body Dementia.

When calling or emailing the LBD Caregiver Link, you will speak with an experienced caregiver who can provide information on LBD and who can also share their personal experience and compassion.

Toll-free LBD Caregiver Link – 800.539.9767

For caregivers who do not have Internet access or who wish to speak to someone, the toll-free accessline provides a link to experienced LBD caregivers. Please leave a message and an LBDA volunteer will return your call within 24-48 hours.

Full Life Care

http://www.fulllifecare.org/

Welcome to Full Life Care – formerly ElderHealth Northwest. Full Life helps adults of all ages with chronic illnesses, physical or developmental disabilities. We are a not-for-profit organization dedicated to improving people’s lives and supporting caregivers. Since the 1970s, we have helped thousands of individuals preserve their dignity and avoid living in a nursing home or in isolation.

This is a great organization. My Dad visited them for years and got a lot of support through their Men's Support Group. I highly recommend them for help and support of your loved one.

Memory Care & Wellness Services

Memory Care & Wellness Services is a specialized, dementia day service program. It offers a blend of health, social and family caregiver supports – including a structured exercise program for the person with dementia. It is offered as a supportive service through the Family Caregiver Support Programs in Whatcom (St. Joseph Medical Center), Skagit (Skagit Adult Day Care) and King Counties (Full Life Care) - for families living with dementia. Certain eligibility criteria apply; and, a sliding fee based on income of the participant may be required

For more information in these areas, call your local Family Caregiver Support Program:

King County: (206) 206-448-3110 or 1-888-435-3377
Skagit County: (360) 428-1301
Whatcom County: (360) 676-6749

Check out Seattle's Grief center if you or someone you know needs a little extra support during a tough time.
http://www.healingcenterseattle.com

What is the Helpline?

The Alzheimer's Association's Helpline is a toll-free number that you can call 24-hours a day, 7 days a week to get information about Alzheimer's disease. Through our National office, we have the ability to serve individuals in 140 different languages by accessing translation services.

Call 800.272.3900 to speak with a trained Helpline specialist who will provide emotional support and appropriate referrals to local resources in the 23 counties served by the Association. All calls are confidential.

Some great resources I just found:
Memory Care & Wellness Services, ElderHealth Northwest
(206) 528-5315
• Care Consultation, Alzheimer's Association
(206) 363-5500
• Dementia Partnerships Project
Carlos Pulido, Aging and Disability Services
(206) 615-0802

Events

The Washington branch of the Alzheimer's Association invites you to join them at one of their three upcoming A Reason to Hope Breakfasts.

CLICK HERE for the Breakfast Save the Date postcard

Interested in sponsoring the Breakfasts? CLICK HERE for the sponsor levels and benefits.

Tuesday, April 16, 2013 - Tacoma - Hotel Murano
Doors open: 7:00am | Program starts: 7:30am | Program ends: 8:30am
Emcee: John Sharify, KING 5 Television
Speaker: Lon Cole, early stage younger-onset Alzheimer's and our Chapter’s poet laureate
CLICK HERE to see the report, Alive and Thankful, that John and photographer Doug Burgess did of Lon back in December.

Thursday, April 25, 2013 - Bellevue - Bellevue Westin
Doors open: 7:00am | Program starts: 7:30am | Program ends: 8:30am
Emcee: Allen Schauffler, KING 5 Television
Speaker: Allyson Valentine Schrier, whose husband has younger-onset Frontotemporal Dementia (FTD)

Wednesday, May 8, 2013 - Seattle - Hyatt at Olive 8
Doors open: 7:00am | Program starts: 7:30am | Program ends: 8:30am
Emcee: Lisa Van Cise, KING 5 Television
Speaker: Tom Ruttkay, whose wife is in the early stages of Alzheimer’s

These inspiring, one-hour events will educate you about our work at the Alzheimer’s Association. You’ll learn about the critical support, care and education we provide to individuals and families, as well as how we fund research to develop better treatments and to bring us closer to a world without Alzheimer’s.

The Breakfasts are free to attend, and at the program’s conclusion, guests are given the opportunity to reinforce their commitment to the Alzheimer’s Association by making a contribution.

Please note: you must RSVP to attend this event.
Seating is limited!

To RSVP, or become a Table Captain or sponsor a table, contact Sally Chong at schong@alz.org or 206.529.3865.

We hold webinars for family caregivers on the last Wednesday of every month at Noon ET. Here’s this month’s webinars:

Tired of hearing that your community doesn’t have a support group for family caregivers? Or a support group that meets your needs? Why not start your own? Bette, who blogs on Caregiving.com and started a support in August 2011, and Denise will share tips and suggestions on how to start a group. They’ll also tell you about the resources available on Caregiving.com that will help make your group a success.

Can’t attend the live webinar? Still register; we’ll send you a link to the archive. Register at Caregiving.com.

The Alzheimer’s Café – sponsored by Greenwood Senior Center

2nd Tuesday of each month , from 3:30-5 p.m.

Mae’s Phinney Ridge Café, 6412 Phinney Ave. N., Seattle

No reservations necessary; the only cost is your dessert and drink.

For more information, call GSC Social Worker Carin Mack at 206-297-0875.

Modeled after a large movement in Europe and only one other established café in the US, the Alzheimer’s Café is a café for people with memory loss and their care partners providing an outlet for interaction, an opportunity to get out and socialize in a safe environment. No judgment, no expectation…just support, good food and fun! CLICK HERE FOR INFORMATIONAL FLYER

http://blog.seattlepi.com/witnessingalzheimers/2011/12/05/greenwoods-dec-13th-alzheimers-cafe-at-maes-in-phinney-ridge/

here:now – Making Art Accessible to People with Dementia

Join us for the Frye Art Museum’s program for individuals with dementia and their care partners. here:now provides gallery discussion tours and art-making opportunities for those living with dementia to enjoy a creative and relaxing afternoon together.

Gallery Tours
Each month specially trained museum educators and gallery guides lead a discussion-based tour highlighting works of art from the Frye’s exhibitions. Conversation creates an exchange of ideas without relying on short-term memory or recall of art historical information. Tours also include in–gallery hands-on activities.

Tuesdays, 2:30-4 pm
February 5, March 5, April 2, May 7

Wednesdays, 2:30-4 pm
February 27, March 27, April 17, May 22

Preregistration is required for each tour
(206)432-8211 or herenow@fryemuseum.org

Gallery Tour and Art-making Class
This six-session class offers conversation-based gallery tours and studio art-making experiences for individuals with dementia and their care partners. Art-making in the Frye Studio encourages experimentation with various media including watercolor paint, clay and collage. A short social time concludes each class.

Six Wednesdays, 2:30-4:30 pm
Spring I Class: Wednesdays, March 6, 13, 20, 27; April 3, 10
Spring II Class: Wednesdays, April 24; May 1, 8, 15, 22, 29

Preregistration is required for the six-session class
(206)432-8211 or herenow@fryemuseum.org

Great Books!

Transitions: Making Sense of Life's Changes - William Bridges
Dementia: The Journey Ahead - Susan Kiser Scarff
The Caregiver's Guide to Lewy Body Dementia - James and Helen Buell Whitworth
The Selfish Pig's Guide to Caring - Hugh Marriott
Caregiving - Beth Witrogen McLeod
Dying Well - Ira Byock
The Good Caregiver - Robert Kane
The Other Side of Sadness - George Bonanno
The Simplicity of Dementia - Huub Buijssen
Nasty, Brutish and Long - Ira Rosofsky
A Bittersweet Season - Jane Gross
The Orphaned Adult - Alexander Levy
The Molecules of Emotion - Candace Pert
A Grief Observed - C.S Lewis
Passages in Caregiving - Gail Sheehy
God's Perfect Child: Living and Dying in the Christian Science Church - Caroline Fraser
The Forgetting: Portrait of an Epidemic - David Shenk
Learning to Speak Alzheimer's
Mother in the Middle - Kay Lockhart
Alzheimer's: A Care-giver's Guide and Sourcebook - Howard Gruetzner
Eat, Pray, Love - Elizabeth Gilbert
On Writing - Stephen King
There if You Need Me - Kate Braestrup
The Family on Beartown Road - Elizabeth Cohen
Love Walked In - Marisa de los Santos
The Glass Castle - Jeannette Walls
The Boys of My Youth - Jo Ann Beard
Finding Life in the Land of Alzheimer's - Lauren Kessler

It Took 3 Years and 13 Dumpsters to Clean Up After Lewy Body Dementia.

Friday, May 18, 2012

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LBD Support Group

Three Years and Thirteen Dumpsters.

Available on Amazon.

My Young Father.

Information on Lewy Body Dementia.

Click either link below to hear me speak on the caregiver's journey at Caregiving.com!

http://www.caregiving.com/2012/08/how-do-you-define-forgiveness

Featured Information.

A Changing Space for Great Links for Information on Lewy-Body Dementia.

Tell Your Stories: A List of Great Blogs About Life, Caregiving and Dementia!

Sites to be Seen

"Our deepest calling is to grow into our own authentic self-hood, whether or not it conforms to some image of who we ought to be. As we do so, we will not only find the joy that every human being seeks -- we will also find our path of authentic service in the world." Parker J. Palmer

FEATURING:

LBD Caregiver Link

LBD families and caregivers can connect directly on a regional basis, through the LBD Caregiver Link, featuring “Lewy Buddies.” “Lewy Buddies" are experienced LBD caregivers who share their time and experience with LBD families by:

Listening compassionately and confidentially to the challenges of LBD families and sharing their own personal experience with LBD

Offering emotional support

Referring families to additional LBDA programs and services as appropriate for their needs.

When calling or emailing the LBD Caregiver Link, you will speak with an experienced caregiver who can provide information on LBD and who can also share their personal experience and compassion.

Toll-free LBD Caregiver Link – 800.539.9767

For caregivers who do not have Internet access or who wish to speak to someone, the toll-free accessline provides a link to experienced LBD caregivers. Please leave a message and an LBDA volunteer will return your call within 24-48 hours.

Full Life Care

Memory Care & Wellness Services

Events

The Alzheimer’s Café – sponsored by Greenwood Senior Center

here:now – Making Art Accessible to People with Dementia

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