I've probably mentioned this book before but I don't think I've done a formal review, so here it is!
A Caregiver's Guide to Lewy Body Dementia by James and Helen Whitworth is the definitive book about LBD and how to care for someone who has it. The Whitworth's were instrumental in forming the Lewy Body Dementia Association, and James' first wife suffered from the disease - so they know whereof they speak!
I consider this the Bible of LBD care; my copy is underlined, written on, and has sticky tabs poking out from the side to mark some of the most important information. I recommend it to almost every single caregiver I speak to as being probably the best resource they could get to help them in their situation.
The Whitworth's really understand LBD, as well as it can be understood, and they know what it's like to be caregivers. They go through most of the stages of the illness, the symptoms and behaviors, and what the end of the disease looks like. They also list the medications that are really contraindicated for LBD, including antipsychotics and anesthesia, and which medications might help the disease.
All of this information is conveyed in a clear, straightforward style; neither patronizing nor overly complicated. It is not overwhelming with it's information, and it really helps people know what to look for and what they might expect from the disease. It is as if you are sitting and having a conversation with someone who knows a lot about LBD.
Regardless of whether you and your family are newly affected by the disease or have been dealing with it for some time, this book can help you out. Order it on Amazon today, or go to their website, listed on my sidebar, lbdtools.com
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