I've been looking for some new LBD blogs and groups; many of the ones I knew aren't current because the care receiver is gone and the caregiver has moved on to other things. Here are a few groups and sites I've found that you may not know about and I hope you find them as interesting as I do!
Also, there is an International Dementia with Lewy Bodies Scientific conference coming up in December in Miami that is including a two-day caregiver/care receiver track. I'm on one of the committees helping to plan it and it's probably going to be a great experience, full of the latest scientific info and research, and support. I'll be posting more about it as we get closer to the date.
https://lewywarriors.wordpress.com/
http://lbdtools.com/ This one is awesome, of course.
https://www.facebook.com/groups/lyndseywilliams/ This is a closed group so you must ask to be included but it looks great.
http://lifetimesthreelivingwithlbd.blogspot.com/
http://www.lewybodyjournal.org/
http://parkblog-silverfox.blogspot.com/
http://confessionsof1caregiver.blogspot.com/
Subscribe to:
Post Comments (Atom)
You are very fortunate to have good care now and along your journey with your father because he has the money to get it and could even pay for your help when you needed financial support.
ReplyDeleteI've become a Senior Advocate especially for those in Long Term Care Facilities housing men and women on Medicaid who generally receive the lowest provision of care and support.
My concern is the general belief everyone is safe and well cared for in Long Term Care facilities and while I see your website as informative I do not see the reality of facing the neglect and abuse Seniors in LTC often face. That's not what we want to hear or read, is it? But it's widespread and underreported.
Since my mother who had LBD undiagnosed for many years passed, I'm focused on enlightening the general public to the need for more Sunshine Laws and general full disclosure in all 50 States regarding care giving in facilities.
LBD leaves people very vulnerable to Undue Influence and to being victims of neglect and abuse. Since they often have visual and auditory hallucinations people often set aside their concerns and complaints.
You've visited my website and, yes, I'm one of those who have "moved on" and write about other things -- usually the survival before, during and after Mom's death and also that of my husband. That's important, too, because we are the voice of experience, we walked the walk and talked the talk and we often wait with "baited breath" for "our time" as many of us are concerned about walking the path our loved ones have only this time being in the front of the line.
This comment has been removed by a blog administrator.
ReplyDeleteThis comment has been removed by the author.
ReplyDeleteشركة تنظيف منازل بالمدينة المنورة
ReplyDeleteشركة كشف تسربات المياه بخميس مشيط
Its a valuable content shared,would like to know more about it.
ReplyDeleteFactory Cleaning Service in Mumbai
طريقة عمل كيكة القرفه
ReplyDeleteكيكة النوتيلا
طريقة عمل ساندوتش بيتزا فراخ
تحضير الشاورما بالمنزل
I am glad to visit this side. Your posts are amazing. I love to travel and discover new places. I love it.
ReplyDeleteI suffered from this horrible syndrome (ALZHEIMER'S DISEASE)...and it was horrible...for the past 3 years this has taken over pretty much all of my walking moments along with other medical issues. My family/friends have been with me through it all. But Today I am pain free!! I can't even believe how this all happened...I am just as amazed as, my family/friends are...none of us can believe how long I suffered and now in literally a matter of months I am completely pain free.
ReplyDeleteHow? Well let me tell you.....Months ago my Friend told me about something called ZOMO HERBS....I heard him, but I didn't listen.....I went on just suffering along, Then My friend Raval, talked to my wife about it one night, when I was at my lowest point.....just wanting to give up...this wasn't the way I wanted to live...always in constant pain..Raval said, I will send you ZOMO HERBS..... I started using it and the rest is history my friends, There was a light at the end of the Tunnel... The results were immediate, it did take my pain away, but not completely....it was not until I upped the dosage to 3 times daily that I saw complete results.....NO PAIN.....I became so thrilled over the results that I decide to share my testimony.....If I can help even one person and that person helps one person and so on...we can all be out of pain and regaining our lives back....sound good? I have my life back!!!! I want you to have yours back too! Simply try to reach the doctor on (charantova@gmail.com) for more information about his treatment process or how to get his medicine.
In my own case it was just over four years ago when my Mum began to sound different on the phone. She lived back East with my siblings and my husband and I were living on the West coast and in phone calls it became apparent that my Mum's voice no longer had the same tones of excitement and humor that she used to; and instead it was very flat. At the same time she began to tell us about a situation at work that just didn't seem possible; she was complaining that a group of fellow workers were conspiring to get her. Although Mum had much academic success as a teenager, her behavior had become increasingly odd during the past years. She quit seeing her friends and no longer seemed to care about her appearance or social pursuits. She began wearing the same clothes each day and seldom bathed. She lived with several family members but rarely spoke to any of us. Obviously this whole story seemed very unbelievable and we sensed something was wrong but had no clue as to what it could be. We recommended that my Mum quit her job and look for something else - as we began to wonder if she had a "mental breakdown" and would get better once out of the stressful job situation.
ReplyDeleteIn the case of Mum, she was having persecurtory delusions, auditory hallucinations and negative symptoms that had lasted for at least Three years. All of these symptoms fit with a diagnosis of Dementia. Her story reflects a common case, in which a high-functioning young adult goes through a major decline in day-to-day skills. Although family and friends may feel this is a loss of the person they knew, the illness can be treated and a good outcome is possible as it all got better when we started using a herbal medicine for her through Aparajita.
My recommendation to people who are either wondering if they have DEmentia or wondering if a friend or loved one has Dementia should contact aparajitatan@gmail.com. I think one of our key problems was that we didn't do this in the early days of my Mum's illness as we never thought of a natural alternative for her.
For those people whose relative are suffering from Alzheimer’s Disease and maybe reading this, I find it hard that people are still ignorant of herbal medicine when it comes to treating Alzheimer’s Disease.
ReplyDeleteI have been through many phases over the last couple of years since my father's diagnosis, he was 53 years old and had Early Onset Alzheimer’s Disease and his diagnosis changed my life in many ways, I spend most of the time in denial and I keep thinking the tests were wrong. But deep down I knew they were correct. Though sharing his story is very difficult. He was always very successful in being able to accomplish anything he set his mind on doing. Alzheimer’s is a bitch of a disease. It began by robbing his recent memory, but it didn't stop there. It continues to steal, taking the most recent memories until it has pilfered all but the oldest memories, he experienced a decline in his ability to think, remember and make decisions. I feel a need to express my thoughts and feelings about how it affected his day to day living and how its deteriorated since despite the help of some wonderful medics and medicine.
I remind myself how lucky to come across Charanjit rychtova's herbal medicine which is able to control this disease without any side effect, I felt a moment of relief hoping that he is free from this ailment, and nothing compares to the healing power of nature. Now I believe almost every health problem can be addressed in one natural way or another. The only thing I wanted was for him to feel better. I’m proud to say my Dad is Alzheimer’s free. You can also contact him for advice and more info. charantova@gmail.com
Alomaids is one of the leading cleaning company in Dubai. Alomaids provides best cleaning services and maids in Dubai.
ReplyDeleteMaids Dubai
Hiv disease for the last 3 years and had pain hard to eat and cough are nightmares,especially the first year At this stage, the immune system is severely weakened, and the risk of contracting opportunistic infections is much greater. However, not everyone with HIV will go on to develop AIDS. The earlier you receive treatment, the better your outcome will be.I started taking ARV to avoid early death but I had faith in God that i would be healed someday.As a Hiv patent we are advise to be taking antiretroviral treatments to reduce our chance of transmitting the virus to others , few weeks ago i came on search on the internet if i could get any information on Hiv treatment with herbal medicine, on my search i saw a testimony of someone who has been healed from Hiv her name was Achima Abelard and other Herpes Virus patent Tasha Moore also giving testimony about this same man,Called Dr Itua Herbal Center.I was moved by the testimony and i contacted him by his Email.drituaherbalcenter@gmail.com We chatted and he send me a bottle of herbal medicine I drank it as he instructed me to.After drinking it he ask me to go for a test that how i ended my suffering life of Hiv patent,I'm cured and free of Arv Pills.I'm forever grateful to him Drituaherbalcenter.Here his contact Number +2348149277967...He assure me he can cure the following disease..Hiv,Cancer,Herpes Virus,Epilepsy,Hepatitis,Parkinson disease.Diabetes,Fibroid...
ReplyDeleteI am bold enough among many others to state that there is now a potent cure to this sickness but many are unaware of it. I discovered that I was infected with the virus 3 months ago, after a medical check-up. My doctor told me and I was shocked, confused and felt like my world has crumbled. I was dying slowly due to the announcement of my medical practitioner but he assured me that I could leave a normal life if I took my medications (as there was no medically known cure to Herpes). I went from churches to churches but soon found that my case needed urgent attention as I was growing lean due to fear of dying anytime soon. In a bid to look for a lasting solution to my predicament, I sought for solutions from the herbal world. I went online and searched for every powerful trado-medical practitioner that I could severe, cos I heard that the African Herbs had a cure to the Herpes syndrome. It was after a little time searching the web that I came across one Dr Itua(A powerful African Herbal Doctor), who offered to help me at a monetary fee. I had to comply as this was my final bus-stop to receiving a perfect healing. My last resolve was to take my life by myself, should this plan fail. At last it worked out well. He gave me some steps to follow and I meticulously carried out all his instructions. Last month, to be precise, I went back to the hospital to conduct another test and to my amazement, the results showed that negative,Dr Itua Can As Well Cure The Following Desease…Cancer,Hiv,Herpes, Hepatitis B,Liver Inflammatory,Diabetis,Fribroid,Get Your Ex Back, You can free yourself of this Herpes virus by consulting this great African Herbal Doctor via this e-mail: drituaherbalcenter@gmail.com or call and whatsapp him on +2348149277967 He will help you and his herb medication is sure. he has the cure on all disease .You can talk to me on INSTAGRAM..tashamoore219....
ReplyDeleteAs a sign of gratitude for how my son was saved from dementia , i decided to reach out to those still suffering from this.
ReplyDeleteMy son suffered dementia and it was really tough and heartbreaking for me because he was my all and the symptoms were terrible, we tried various therapies prescribed by our neurologist but none could cure him. I searched for a cure and i saw a testimony of so many people who was cured from dementia and so many other with similar body problem, and they left the contact of the doctor who had the herbal cure to dementia . I never imagined dementia has a cure not until i contacted him and he assured me my son will be fine. I got the herbal medication he recommended and my son used it and in one months he was fully okay even up till this moment he is so full of life. dementia has a cure and it is a herbal cure contact the doctor for more info on drwilliams098675@gmail.com on how to get the medication. Thanks for reading my testimony
I would be ungrateful if I decided not to share our success experience with ZOMO, I was a born caregiver, so it’s hard for me to look at my own needs as separate from my Dad’s needs. Most patients just need someone to hug them and tell them that they are not worthless, the treatment I tried not only worked but I believe cured him.
ReplyDeleteHe was diagnosed in 2011. I took Dad to the GP after noticing that he had become increasingly forgetful and vague. The clear sign that something was wrong came when he drove his car to the local shops (a five minute drive), bought his shopping, then walked back home, forgetting the car was parked outside the shop. The next day he rang me to say the car had been stolen. He had no recollection of leaving it behind. After a week he began to repeat himself and ask the same questions. He would struggle to remember conversations that had only occurred five minutes earlier.
His situation was very complicated. I understand how one feel as a daughter and once caregiver, memory loss is so much more complicated. Many have been conditioned to think that traditional medicine has not found a cure for a disease. ZOMO have challenged this train of my thought. When he was ill, it was a tragedy, I endured, I was broken, I knew hardship, I was lost. But here I stand and I can tell you unequivocally that my Dad is cured. It is those of us who have been broken that understand the meaning of memory loss. As I look at the past and start writing this, tears of joy overwhelm me. I realize that every time I thought I was being rejected from something good, I was actually being redirected to something better. It was one of my most difficult jobs and one that I poured my heart and soul into daily. Taking into account how well my Dad progressed in that space of time and now. There is no more memory loss symptoms for more than 6months now. The thing is, I get peace of mind when Dad is well taken care of: when he’s happy, I’m happy. Right now, it’s all about him…I always enter into his world so we can manage life together. We wake up every morning with a smile and we look forward to what the new day will bring. Reach out to him at charantova@gmail.com
I am 29 years old and have been diagnosed with breast cancer, ease of treatment and a similar story, except for my first acceptance as a rejection of herbal medicine. I was not part of the Perseid movement and did not really build relationships with any of them, I just believed in their operation. I say this because it was during the use of Dr. Itua herbal medicine that I now attest that herbal medicine is real, the phytotherapy Dr. Itua heal my breast cancer which I suffered for 2 years. Dr. Itua herbal medicine is made of natural herbs, with no side effects, and easy to drink. If you have the same breast cancer or any type of human illness, including HIV / AIDS, herpes cancer,Ovarian Cancer,Pancratics cancers, bladder cancer, bladder cancer, prostate cancer, Glaucoma., Cataracts,Macular degeneration,Cardiovascular disease,Lung disease.Enlarged prostate,Osteoporosis.Alzheimer's disease,
ReplyDeleteDementia.kidney cancer, lung cancer, skin cancer, skin cancer and skin cancer.testicular Cancer, , LEUKEMIA, VIRUSES, HEPATITIS, INFERTILITY WOMEN / MAN, LOT OF LOVE, LOTTERY. ITS CONTACT EMAIL / WHATSAPP: info@drituaherbalcenter.com Or drituaherbalcenter@gmail.com/ +2348149277967
Here is my contact phone number. +1-913-9518-145 if you would need some advise from me.
DOES HERBS WORK FOR DEMENTIA?
ReplyDeleteThis was the same question that prompted me to read further a testimony I saw on a blog. I would like to tell a story - hoping it will be useful to others - of my struggles and achievements with Dementia. I was diagnosed a little over 4 years ago, No doctors I met have any treatment or even suggestions apart western medications. I even sought advice on Youtube, to no avail. After using the conventional approach to medication treatment without improvement. I am glad something happens fast. There have been suicides due to people not being able to continue on living with the endless memory challenges. It is horrible. I learned about Dr. charanjit herbal medicine that works effectively for me without any negative effects. I have returned back to my normal life and I hope that the symptoms do not return again, It really helped me! If you have Dementia kindly contact Dr. Charanjit for help and necessary solution (charantova@gmail.com)
123.hp.com/setup 5055
ReplyDelete123.hp.com/setup 5052
123.hp.com/setup 7858
123.hp.com/setup 7155
ReplyDelete123.hp.com/setup 7855
123.hp.com/setup 2652
123.hp.com/setup 2600
ReplyDelete123.hp.com/setup 3752
123.hp.com/setup 2622
123.hp.com/setup 5255
ReplyDelete123.hp.com/setup 5252
123.hp.com/setup 5258
123.hp.com/setup 5200
ReplyDelete123.hp.com/setup 3830
123.hp.com/setup 6968
123.hp.com/setup 8710
123.hp.com/envy7155
ReplyDelete123.hp.com/envy7855
123.hp.com/dj2652
123.hp.com/dj2600
ReplyDelete123.hp.com/dj3752
123.hp.com/dj2622
123.hp.com/oj5255
ReplyDelete123.hp.com/oj5252
123.hp.com/oj5258
123.hp.com/oj5200
ReplyDelete123.hp.com/oj3830
123.hp.com/ojpro6968
123.hp.com/ojpro8710
Top 8 địa danh lịch sử ở Florida
ReplyDelete5 hành trình cho một chuyến đi xa xỉ ở California USA Mỹ
KINH NGHIỆM PHỎNG VẤN XIN VISA DU LỊCH MỸ
Conglyvaness (u/conglyvaness) - Reddit
Bảo tàng Madame Tussauds ở Times Square Hoa Kỳ
Vé máy bay đi Mỹ khứ hồi
Du lịch Công viên Fenway Mỹ
Du lịch bờ tây Mỹ và kinh nghiệm mua vé máy bay đi mỹ
Alaska, điểm dừng lịch sử trong biên giới cuối cùng Mỹ
Đường thủy phía đông Indiana
Thanks to Dr. James for his help in shrinking off my long term uterine fibroid. I had pelvic pain, heavy menses and swelling. I went to the hospital and was diagnosed with fibroid and advised to go for surgery. I was scared and I went online for more info and remedy about fibroid. Luckily, I found Dr. James natural medication for fibroid. I reached out to him, and he prepared me with his herbal medicine for fibroid shrinking, and i used the medicine as he prescribed for me and my fibroid disappeared totally and is now a year plus since I got cured.his herbal medicine is easy to drink with no side effects.If you know anyone suffering from these diseases or having any health challenges should contact Dr. JAMES for natural treatments. His herbal mix medicine is easy to drink with no side effects. Dr.James has cure for diseases like Pcos,Plantar-warts,Ovarian cyst, Parkinson's disease,Schizophrenia,Lung Cancer,Breast Cancer,Colo-Rectal Cancer,Blood Cancer,Prostate Cancer ,Epilepsy Dupuytren's disease ,Celiac disease,Creutzfeldt–Jakob disease,Cerebral Amyloid Angiopathy, Ataxia,Arthritis,Amyotrophic Lateral Sclerosis,Fibromyalgia,Fluoroquinolone Toxicity
ReplyDeleteSyndrome Fibrodysplasia Ossificans ProgresS sclerosis,Seizures,Alzheimer's disease,Adrenocortical carcinoma.Asthma,Allergic diseases ,Copd,Glaucoma., Cataracts,Macular degeneration, Cardiovascular disease,Lung disease.Enlarged prostate,Osteoporosis,Lupus,Cushing’s disease,Heart failure,Multiple Sclerosis,Hypertension,Lyme Disease,Blood Cancer,Brain Cancer, Breast Cancer, Lung Cancer,Kidney Cancer, HIV/AIDS, Herpes Virus,Hepatitis B, Liver Inflammatory, Diabetes,Fibroid. Contact this Great man on his email and get a permanent cure of your diseases. Dr James Email Address drjamesherbalmix@gmail.com
I can’t forget in a hurry my Mom's horrible years of fight with Mental ailment (Alzheimer). My Mom got really sick around Christmas that year. When I saw her in the hospital with all those tubes, I just lost it. I got so hysterical that I had to be escorted out. Soon after that, I got into that altercation with my neighbor and was sent to jail. When I got out of jail, Her symptoms were acting up and I felt so angry. Dad had already taken her to a state psychiatric hospital. I was really nervous, but I talked to a psychiatrist there who made me feel comfortable. For the first time, she opened up about what she was experiencing—the voices, not being able to remember things, the paranoia. She said, “Your mom is battling Alzheimer.” I didn’t even know what that meant.
ReplyDeleteHe suggested that when she got out of the hospital and off the treatments she was taking there, we try a new treatment for Alzheimer. After weighing the risks and benefits, we both agreed the treatment, given through monthly injections, might help control her symptoms. Meanwhile, I made friends, and gained insight into her illness. During the week, there were movies, cooking classes and education sessions about her disease—basically, activities to help people like her get back into society. I learned about Alzheimer and what some of her triggers were. All told, she stayed there for two months and we left, I was taking her for doctor’s appointments and grocery shopping. It was hard, especially when her birthday passed, I still helped her walk, fix her food and dress her which made me sad because she was very active at 69 until the illness struck her.
I came across a herbal medication sometimes last year called zomo but before we started the treatment, we started a day rehabilitation program, and also started the new medication with zomo. I was working hard to achieve my care goals by following the treatment plan. Her symptoms got under control within three months, as she started feeling better. First she regained interest in the things she used to enjoy, like calling/visiting our family and friends for lunch and going for walks in the park and grocery shopping. I will never forget what I went through, or what it took for her to get here. I don’t take any of it for granted. I consider myself an advocate for people who don’t have any knowledge about this herbal medicine. To anyone who’s taken the time to read this that may be struggling with this awful ailment (Alzheimer), reach out, share, I guarantee you reach out to charantova@gmail.com, and know, that as lonely as you may feel, as hopeless as you believe things are, please know, that there are so many patients out there going through same and you are never alone! reach out to him so you could share your own testimony to let others know there is hope.