Wednesday, August 12, 2015

New Places!

I've been looking for some new LBD blogs and groups; many of the ones I knew aren't current because the care receiver is gone and the caregiver has moved on to other things. Here are a few groups and sites I've found that you may not know about and I hope you find them as interesting as I do!
Also, there is an International Dementia with Lewy Bodies Scientific conference coming up in December in Miami that is including a two-day caregiver/care receiver track. I'm on one of the committees helping to plan it and it's probably going to be a great experience, full of the latest scientific info and research, and support. I'll be posting more about it as we get closer to the date.

https://lewywarriors.wordpress.com/

http://lbdtools.com/  This one is awesome, of course.

https://www.facebook.com/groups/lyndseywilliams/ This is a closed group so you must ask to be included but it looks great.

http://lifetimesthreelivingwithlbd.blogspot.com/

http://www.lewybodyjournal.org/

http://parkblog-silverfox.blogspot.com/

http://confessionsof1caregiver.blogspot.com/




10 comments:

  1. You are very fortunate to have good care now and along your journey with your father because he has the money to get it and could even pay for your help when you needed financial support.

    I've become a Senior Advocate especially for those in Long Term Care Facilities housing men and women on Medicaid who generally receive the lowest provision of care and support.

    My concern is the general belief everyone is safe and well cared for in Long Term Care facilities and while I see your website as informative I do not see the reality of facing the neglect and abuse Seniors in LTC often face. That's not what we want to hear or read, is it? But it's widespread and underreported.

    Since my mother who had LBD undiagnosed for many years passed, I'm focused on enlightening the general public to the need for more Sunshine Laws and general full disclosure in all 50 States regarding care giving in facilities.

    LBD leaves people very vulnerable to Undue Influence and to being victims of neglect and abuse. Since they often have visual and auditory hallucinations people often set aside their concerns and complaints.

    You've visited my website and, yes, I'm one of those who have "moved on" and write about other things -- usually the survival before, during and after Mom's death and also that of my husband. That's important, too, because we are the voice of experience, we walked the walk and talked the talk and we often wait with "baited breath" for "our time" as many of us are concerned about walking the path our loved ones have only this time being in the front of the line.

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