Wednesday, August 12, 2015

New Places!

I've been looking for some new LBD blogs and groups; many of the ones I knew aren't current because the care receiver is gone and the caregiver has moved on to other things. Here are a few groups and sites I've found that you may not know about and I hope you find them as interesting as I do!
Also, there is an International Dementia with Lewy Bodies Scientific conference coming up in December in Miami that is including a two-day caregiver/care receiver track. I'm on one of the committees helping to plan it and it's probably going to be a great experience, full of the latest scientific info and research, and support. I'll be posting more about it as we get closer to the date.

https://lewywarriors.wordpress.com/

http://lbdtools.com/  This one is awesome, of course.

https://www.facebook.com/groups/lyndseywilliams/ This is a closed group so you must ask to be included but it looks great.

http://lifetimesthreelivingwithlbd.blogspot.com/

http://www.lewybodyjournal.org/

http://parkblog-silverfox.blogspot.com/

http://confessionsof1caregiver.blogspot.com/




19 comments:

  1. You are very fortunate to have good care now and along your journey with your father because he has the money to get it and could even pay for your help when you needed financial support.

    I've become a Senior Advocate especially for those in Long Term Care Facilities housing men and women on Medicaid who generally receive the lowest provision of care and support.

    My concern is the general belief everyone is safe and well cared for in Long Term Care facilities and while I see your website as informative I do not see the reality of facing the neglect and abuse Seniors in LTC often face. That's not what we want to hear or read, is it? But it's widespread and underreported.

    Since my mother who had LBD undiagnosed for many years passed, I'm focused on enlightening the general public to the need for more Sunshine Laws and general full disclosure in all 50 States regarding care giving in facilities.

    LBD leaves people very vulnerable to Undue Influence and to being victims of neglect and abuse. Since they often have visual and auditory hallucinations people often set aside their concerns and complaints.

    You've visited my website and, yes, I'm one of those who have "moved on" and write about other things -- usually the survival before, during and after Mom's death and also that of my husband. That's important, too, because we are the voice of experience, we walked the walk and talked the talk and we often wait with "baited breath" for "our time" as many of us are concerned about walking the path our loved ones have only this time being in the front of the line.

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  10. In my own case it was just over four years ago when my Mum began to sound different on the phone. She lived back East with my siblings and my husband and I were living on the West coast and in phone calls it became apparent that my Mum's voice no longer had the same tones of excitement and humor that she used to; and instead it was very flat. At the same time she began to tell us about a situation at work that just didn't seem possible; she was complaining that a group of fellow workers were conspiring to get her. Although Mum had much academic success as a teenager, her behavior had become increasingly odd during the past years. She quit seeing her friends and no longer seemed to care about her appearance or social pursuits. She began wearing the same clothes each day and seldom bathed. She lived with several family members but rarely spoke to any of us. Obviously this whole story seemed very unbelievable and we sensed something was wrong but had no clue as to what it could be. We recommended that my Mum quit her job and look for something else - as we began to wonder if she had a "mental breakdown" and would get better once out of the stressful job situation.
    In the case of Mum, she was having persecurtory delusions, auditory hallucinations and negative symptoms that had lasted for at least Three years. All of these symptoms fit with a diagnosis of Dementia. Her story reflects a common case, in which a high-functioning young adult goes through a major decline in day-to-day skills. Although family and friends may feel this is a loss of the person they knew, the illness can be treated and a good outcome is possible as it all got better when we started using a herbal medicine for her through Aparajita.
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  16. Alzheimer's illness is common in my family, I have been stressed at work for at least 16years suffered depression my thoughts were blocked. So I knew the need to keep a watch on it, that was when I began to walk several times a week, 2 miles a day and realized that was a positive thing, but it got to a point my whole body started getting weaker, I needed some help. I started up training, the trainer came to my hometown 5 times a week and he told me that would be able to help me. I agreed with him and was happy I finally found solution not until I woke up one day and couldn't walk. Tried out so many medications and diet but none of them was able to help me. In the process I knew about ZOMO, an herbal medicine for Alzheimer's disease, I followed the blog address shared; I curiously contacted him and got ZOMO. I didn’t want to be disabled at my old age, and was so hungry for more healthy days on earth. My recovery involved both medicine and diet. I never had any complications I experienced while on English medications why using ZOMO. You may contact Dr. Charanjit via his email. charantova@gmail.com or visit his blog via curetoalzheimer.blogspot.com

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