Wednesday, August 5, 2015
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Tales from my eventful and ongoing journey as a Generation X caregiver for my father and as an advocate for Lewy Body Dementia caregivers.
LBD Caregiver Link
Toll-free LBD Caregiver Link – 800.539.9767
LBD families and caregivers can connect directly on a regional basis, through the LBD Caregiver Link, featuring “Lewy Buddies.” “Lewy Buddies" are experienced LBD caregivers who share their time and experience with LBD families by:
v Listening compassionately and confidentially to the challenges of LBD families and sharing their own personal experience with LBD
v Offering emotional support
v Referring families to additional LBDA programs and services as appropriate for their needs.
While Lewy Buddies are not able to provide medical advice and are not medical professionals, they are typically well informed about LBD through their personal experiences and volunteer training with LBDA. They may also be able to help identify information and community resources concerning the diagnosis and care of a person with Lewy body Dementia.
When calling or emailing the LBD Caregiver Link, you will speak with an experienced caregiver who can provide information on LBD and who can also share their personal experience and compassion. Please leave a message and an LBDA volunteer will return your call within 24-48 hours.
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Healthline |
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1-866-232-8484
Compassion. Knowledge. Care.
That's what AFA's toll-free hot line delivers. When you reach out to us, licensed social workers and other professionals knowledgeable about Alzheimer's disease and related illnesses will answer your call. They will respond to your questions and direct you to appropriate local resources to meet your needs. No question is too small; no concern is too insignificant.
AFA's toll-free hot line provides information, counseling by licensed social workers and referrals to community resources across the nation.
The hot line operates during regular business hours—Monday through Friday, 9 am to 5 pm (ET). During these hours, social workers are available by phone, as well as via Skype and live chat; to connect via Skype and live chat, click here. At all other times, please leave a message and we will return your call. To ask a question via e-mail, click here. If your situation is an emergency, please dial 911 when appropriate.
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http://www.fulllifecare.org/
Welcome to Full Life Care – formerly ElderHealth Northwest. Full Life helps adults of all ages with chronic illnesses, physical or developmental disabilities. We are a not-for-profit organization dedicated to improving people’s lives and supporting caregivers. Since the 1970s, we have helped thousands of individuals preserve their dignity and avoid living in a nursing home or in isolation.
This is a great organization. My Dad visited them for years and got a lot of support through their Men's Support Group. I highly recommend them for help and support of your loved one.
The Alzheimer's Association's Helpline is a toll-free number that you can call 24-hours a day, 7 days a week to get information about Alzheimer's disease. Through our National office, we have the ability to serve individuals in 140 different languages by accessing translation services.
Call 800.272.3900 to speak with a trained Helpline specialist who will provide emotional support and appropriate referrals to local resources in the 23 counties served by the Association. All calls are confidential.
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No specific or standard Inclusion Body Myositis Treatment is accessible yet. For the most part, the ailment is not immunosuppressive medications and corticosteroids responsive.
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A ray of hope is on the horizon for patients facing the debilitating effects of the muscle-wasting disease inclusion body myositis. There is currently no Treatment of Inclusion Body Myositis, Translational Medicine, revealed that the drug deserves further study on its potential to slow patients' crippling debilitation.
ReplyDeletehttp://www.herbs-solutions-by-nature.com/Inclusion-Body-Myositis.php
Inclusion Body Myositis Herbal Treatment reduces the causes of muscle. Weakening of respiratory muscles is symptoms of inclusion body myositis.
ReplyDeleteI suffered from this horrible syndrome (ALZHEIMER'S DISEASE)...and it was horrible...for the past 3 years this has taken over pretty much all of my walking moments along with other medical issues. My family/friends have been with me through it all. But Today I am pain free!! I can't even believe how this all happened...I am just as amazed as, my family/friends are...none of us can believe how long I suffered and now in literally a matter of months I am completely pain free.
ReplyDeleteHow? Well let me tell you.....Months ago my Friend told me about something called ZOMO HERBS....I heard him, but I didn't listen.....I went on just suffering along, Then My friend Raval, talked to my wife about it one night, when I was at my lowest point.....just wanting to give up...this wasn't the way I wanted to live...always in constant pain..Raval said, I will send you ZOMO HERBS..... I started using it and the rest is history my friends, There was a light at the end of the Tunnel... The results were immediate, it did take my pain away, but not completely....it was not until I upped the dosage to 3 times daily that I saw complete results.....NO PAIN.....I became so thrilled over the results that I decide to share my testimony.....If I can help even one person and that person helps one person and so on...we can all be out of pain and regaining our lives back....sound good? I have my life back!!!! I want you to have yours back too! Simply try to reach the doctor on (charantova@gmail.com) for more information about his treatment process or how to get his medicine.
For those people whose relative are suffering from Alzheimer’s Disease and maybe reading this, I find it hard that people are still ignorant of herbal medicine when it comes to treating Alzheimer’s Disease.
ReplyDeleteI have been through many phases over the last couple of years since my father's diagnosis, he was 53 years old and had Early Onset Alzheimer’s Disease and his diagnosis changed my life in many ways, I spend most of the time in denial and I keep thinking the tests were wrong. But deep down I knew they were correct. Though sharing his story is very difficult. He was always very successful in being able to accomplish anything he set his mind on doing. Alzheimer’s is a bitch of a disease. It began by robbing his recent memory, but it didn't stop there. It continues to steal, taking the most recent memories until it has pilfered all but the oldest memories, he experienced a decline in his ability to think, remember and make decisions. I feel a need to express my thoughts and feelings about how it affected his day to day living and how its deteriorated since despite the help of some wonderful medics and medicine.
I remind myself how lucky to come across Charanjit rychtova's herbal medicine which is able to control this disease without any side effect, I felt a moment of relief hoping that he is free from this ailment, and nothing compares to the healing power of nature. Now I believe almost every health problem can be addressed in one natural way or another. The only thing I wanted was for him to feel better. I’m proud to say my Dad is Alzheimer’s free. You can also contact him for advice and more info. charantova@gmail.com
Hiv disease for the last 3 years and had pain hard to eat and cough are nightmares,especially the first year At this stage, the immune system is severely weakened, and the risk of contracting opportunistic infections is much greater. However, not everyone with HIV will go on to develop AIDS. The earlier you receive treatment, the better your outcome will be.I started taking ARV to avoid early death but I had faith in God that i would be healed someday.As a Hiv patent we are advise to be taking antiretroviral treatments to reduce our chance of transmitting the virus to others , few weeks ago i came on search on the internet if i could get any information on Hiv treatment with herbal medicine, on my search i saw a testimony of someone who has been healed from Hiv her name was Achima Abelard and other Herpes Virus patent Tasha Moore also giving testimony about this same man,Called Dr Itua Herbal Center.I was moved by the testimony and i contacted him by his Email.drituaherbalcenter@gmail.com We chatted and he send me a bottle of herbal medicine I drank it as he instructed me to.After drinking it he ask me to go for a test that how i ended my suffering life of Hiv patent,I'm cured and free of Arv Pills.I'm forever grateful to him Drituaherbalcenter.Here his contact Number +2348149277967...He assure me he can cure the following disease..Hiv,Cancer,Herpes Virus,Epilepsy,Hepatitis,Diabetes,Fibroid...
ReplyDeleteI would be ungrateful if I decided not to share our success experience with ZOMO, I was a born caregiver, so it’s hard for me to look at my own needs as separate from my Dad’s needs. Most patients just need someone to hug them and tell them that they are not worthless, the treatment I tried not only worked but I believe cured him.
ReplyDeleteHe was diagnosed in 2011. I took Dad to the GP after noticing that he had become increasingly forgetful and vague. The clear sign that something was wrong came when he drove his car to the local shops (a five minute drive), bought his shopping, then walked back home, forgetting the car was parked outside the shop. The next day he rang me to say the car had been stolen. He had no recollection of leaving it behind. After a week he began to repeat himself and ask the same questions. He would struggle to remember conversations that had only occurred five minutes earlier.
His situation was very complicated. I understand how one feel as a daughter and once caregiver, memory loss is so much more complicated. Many have been conditioned to think that traditional medicine has not found a cure for a disease. ZOMO have challenged this train of my thought. When he was ill, it was a tragedy, I endured, I was broken, I knew hardship, I was lost. But here I stand and I can tell you unequivocally that my Dad is cured. It is those of us who have been broken that understand the meaning of memory loss. As I look at the past and start writing this, tears of joy overwhelm me. I realize that every time I thought I was being rejected from something good, I was actually being redirected to something better. It was one of my most difficult jobs and one that I poured my heart and soul into daily. Taking into account how well my Dad progressed in that space of time and now. There is no more memory loss symptoms for more than 6months now. The thing is, I get peace of mind when Dad is well taken care of: when he’s happy, I’m happy. Right now, it’s all about him…I always enter into his world so we can manage life together. We wake up every morning with a smile and we look forward to what the new day will bring. Reach out to him at charantova@gmail.com
I am 29 years old and have been diagnosed with breast cancer, ease of treatment and a similar story, except for my first acceptance as a rejection of herbal medicine. I was not part of the Perseid movement and did not really build relationships with any of them, I just believed in their operation. I say this because it was during the use of Dr. Itua herbal medicine that I now attest that herbal medicine is real, the phytotherapy Dr. Itua heal my breast cancer which I suffered for 2 years. Dr. Itua herbal medicine is made of natural herbs, with no side effects, and easy to drink. If you have the same breast cancer or any type of human illness, including HIV / AIDS, herpes cancer,Ovarian Cancer,Pancratics cancers, bladder cancer, bladder cancer, prostate cancer, Glaucoma., Cataracts,Macular degeneration,Cardiovascular disease,Lung disease.Enlarged prostate,Osteoporosis.Alzheimer's disease,
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Here is my contact phone number. +1-913-9518-145 if you would need some advise from me.
DOES HERBS WORK FOR DEMENTIA?
ReplyDeleteThis was the same question that prompted me to read further a testimony I saw on a blog. I would like to tell a story - hoping it will be useful to others - of my struggles and achievements with Dementia. I was diagnosed a little over 4 years ago, No doctors I met have any treatment or even suggestions apart western medications. I even sought advice on Youtube, to no avail. After using the conventional approach to medication treatment without improvement. I am glad something happens fast. There have been suicides due to people not being able to continue on living with the endless memory challenges. It is horrible. I learned about Dr. charanjit herbal medicine that works effectively for me without any negative effects. I have returned back to my normal life and I hope that the symptoms do not return again, It really helped me! If you have Dementia kindly contact Dr. Charanjit for help and necessary solution (charantova@gmail.com)
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