The answer? I am! I can now proudly refer to myself as a Lewy Buddy. What is that, you might ask? I just completed training with the Lewy Body Dementia Association, lbda.org, and I am now qualified to help people who call the organization with questions, or requests for referrals, or just want to talk about this terrible thing that's descended on their families. I'm so excited to be able to share my experiences and my compassion with those people who are just starting out on this journey. It's a true honor. I'm responsible for the whole West!
If you or someone you know needs some info or just a shoulder to cry on, call our number and you'll either reach someone who can help or be asked to leave a message, and someone (maybe me!)will call you back within 24 hours. The service is, of course, free.
Don't keep your grief or questions inside-get some help. That's what we're here for!
Toll-free LBD Caregiver Link – 800.539.9767
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Welcome to a wonderful organization, Joy. Jim was the LBDA's first Lewy Buddy, back in 2004 or so (before my time!) but of course he wasn't called that then. What a great name--did you coin it? We will be presenting in Seattle on July 25th and hope to meet you then.
ReplyDeleteSo good to hear from you! I've just finished your book and found it immensely helpful. I heard about your presentation from Angela and I hope to be there. I did not coin the name, I think that's something they came up with, very clever! Take care! Joy
ReplyDeleteCONGRATULATIONS!
ReplyDeleteI remember when Hubby was first diagnosed I remember how alone I felt trying to find information and learn about it. I would have LOVED to have a Lewy Buddy then.
The lbda is doing great things in educating people :)
I'm glad you are part of their team!