Lewy Body Dementia: Ten Plus Years of Care, Commentary, and Cleaning Up.: Caregiver Care Package!

Thursday, April 2, 2015

Caregiver Care Package!

Greetings readers, caregivers, and families! My first fundraiser is up and running and I invite you all to visit the link and take a look. As a thank you to everyone who donates, I am giving away a Caregiver Care Package packed with lovely goods and services. Please check out the link for details; whatever you can donate, whether it is $1 or $100, you will be entered if you either make sure to donate under your name, which I will use in the drawing or include your email address in your message. I wanted to do something nice for caregivers, but, of course, you don't have to be a caregiver to win - there are lots of other goodies non-dementia related.

I know most of my readers probably don't live in Seattle, and all of the services, donated by friends and family, are located here. If you win and you're out of town, I'll send you the Care Package goodies (with a few more thrown in) and you can donate the services to a local caregiver.

All the money goes to the LBDA, which does an amazing job supporting caregivers and families, and spreading awareness about LBD. I'll be posting updates here from time to time, and thank you again.

https://give.everydayhero.com/us/lbd-caregivers-need-care

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LBD Caregiver Link

LBD Caregiver Link

Toll-free LBD Caregiver Link – 800.539.9767

LBD families and caregivers can connect directly on a regional basis, through the LBD Caregiver Link, featuring “Lewy Buddies.” “Lewy Buddies" are experienced LBD caregivers who share their time and experience with LBD families by:

v Listening compassionately and confidentially to the challenges of LBD families and sharing their own personal experience with LBD

v Offering emotional support

v Referring families to additional LBDA programs and services as appropriate for their needs.

While Lewy Buddies are not able to provide medical advice and are not medical professionals, they are typically well informed about LBD through their personal experiences and volunteer training with LBDA. They may also be able to help identify information and community resources concerning the diagnosis and care of a person with Lewy body Dementia.

When calling or emailing the LBD Caregiver Link, you will speak with an experienced caregiver who can provide information on LBD and who can also share their personal experience and compassion. Please leave a message and an LBDA volunteer will return your call within 24-48 hours.

FEATURING:

Toll-Free Hot Line at the AFA (Alzheimer's Foundation of America)

1-866-232-8484

Compassion. Knowledge. Care.
That's what AFA's toll-free hot line delivers. When you reach out to us, licensed social workers and other professionals knowledgeable about Alzheimer's disease and related illnesses will answer your call. They will respond to your questions and direct you to appropriate local resources to meet your needs. No question is too small; no concern is too insignificant.

AFA's toll-free hot line provides information, counseling by licensed social workers and referrals to community resources across the nation.

The hot line operates during regular business hours—Monday through Friday, 9 am to 5 pm (ET). During these hours, social workers are available by phone, as well as via Skype and live chat; to connect via Skype and live chat, click here. At all other times, please leave a message and we will return your call. To ask a question via e-mail, click here. If your situation is an emergency, please dial 911 when appropriate.

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Care Connection Teleconferences with the Alzheimer's Foundation of America.

Care Connection Teleconference

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Full Life Care

http://www.fulllifecare.org/

Welcome to Full Life Care – formerly ElderHealth Northwest. Full Life helps adults of all ages with chronic illnesses, physical or developmental disabilities. We are a not-for-profit organization dedicated to improving people’s lives and supporting caregivers. Since the 1970s, we have helped thousands of individuals preserve their dignity and avoid living in a nursing home or in isolation.

This is a great organization. My Dad visited them for years and got a lot of support through their Men's Support Group. I highly recommend them for help and support of your loved one.

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Check out Seattle's Grief center if you or someone you know needs a little extra support during a tough time.
http://www.healingcenterseattle.com/

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What is the Helpline?

The Alzheimer's Association's Helpline is a toll-free number that you can call 24-hours a day, 7 days a week to get information about Alzheimer's disease. Through our National office, we have the ability to serve individuals in 140 different languages by accessing translation services.

Call 800.272.3900 to speak with a trained Helpline specialist who will provide emotional support and appropriate referrals to local resources in the 23 counties served by the Association. All calls are confidential.

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• Dementia Partnerships Project
Carlos Pulido, Aging and Disability Services
(206) 615-0802